There are so many things about this cancer journey that are only evident in retrospect. There are lessons that can only be extracted by making the best possible informed decision at the time, then later reviewing that decision with the wisdom of hindsight.

Looking back, I can see that John’s conclusions about how best to deal with his liver metastases falls into that “you can’t really comprehend all the variables until after the fact” category. It’s not that we had any regrets about our decisions (we did not)– it’s that I hope that others who face similar agonizing treatment decisions might learn from our experience.

If you are reading this post, it is probably because  you or someone you love has colon cancer that has spread to the liver. If that is the case, then you have stumbled upon a rare opportunity to learn first-hand from another colon cancer patient’s four years of experience in navigating the colon cancer maze. It’s all here:

Our doctors told us we were the most informed patient team they had ever encountered– yet we felt utterly lost a great deal of the time. Every cancer patient I’ve talked to felt the same way. We learned so much about The System, and how critical being  an informed patient is to getting the treatment you need, how to deal with difficult doctors, troubleshooting and taking charge of pain control– and so much more, none of which you will hear about from your doctor.

You owe it to yourself and your loved one to benefit from all that we learned the hard way.  This is the kind of information that, until the publication of this book, could only become part of your database by living through it and  realizing in retrospect how all the pieces fit together: colon cancer from the patient’s and caregiver’s point of view.  $9.99 seems like a very small price, considering the emotional and physical suffering you will likely be saved by learning from our experience.

Shedding Light on the Cancer Journey: Navigating the Colon Cancer Maze can now be read on any computer or other reading device. The reader interface is available free from Amazon and is downloadable in seconds.

I will realize absolutely no profit from the sale of this book.  All proceeds from the sale of this book will go towards the support of the 400 monks, nuns and yogis in the seven Tibetan monasteries of Tulku Orgyen Zangpo Rinpoche, who have devoted their lives towards building the foundation for peace and freedom from suffering for all beings in this world.


About surfingon

I live in Hawaii. I surf in the winter and swim in the summer. I have been a hospice volunteer with a contemplative-care oriented hospice for 25 years have been part of their team that trains new volunteers for the last 9 years. I have walked the colon cancer path with my beloved husband these past 5 years. He died very peacefully in April 2009. I now seek to share what we learned, to shed light on the many dark corners of this often mystifying, heartbreaking and heart-opening journey.
This entry was posted in cancer treatments, end of life, side effects of cancer treatments and tagged , , . Bookmark the permalink.


  1. Charlotte Flavin says:

    Really good post, Rachel! On behalf of all the patients who have symptoms of liver metastisis, or liver failure for whatever reason, I thank you. I hope the patients and their families get to read this so they, too, can advocate on behalf of their loved ones.

  2. Kaitlyn says:

    Thanks for this post. I started out reading your veteran rfa post. I am enlightened by your knowledge of all of this. It has helped me understand the pros and cons of the road ahead. Keep up the good blog.

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