SOMETIMES TOO MUCH RESEARCH IS NOT A GOOD THING

If I haven’t already made my position on the subject of researching one’s disease completely clear, I would like to state emphatically: I feel strongly that any cancer patient who wants the best possible outcome absolutely MUST go beyond whatever their doctor has told them. We have to do our own research. The expectation that your oncologist will be completely aware of the smallest nuances of your body’s reaction the your particular chemo regimen and totally up-to-date on cutting-edge treatments is just not reasonable or realistic. However, research is a double-edged sword: it might save you, but it can utterly devastate you as well…

How much research is too much research? How do you know when it’s time to put a lid on it? With virtually unlimited information available on the Internet, how to sift out the garbage?

My goal with this blog (which is now in book form: http://www.amazon.com/dp/B004T3331M has been to take what John and I learned through hard experience, to extrapolate the universals that could ease the lives of other cancer patients and their loved ones, and to translate that into an easy-to-read, easy to search format.

You have stumbled upon a rare opportunity to learn first-hand from another cancer patient’s four years of experience in navigating the cancer maze. Our doctors told us we were the most informed patient team they had ever encountered– yet we felt utterly lost a great deal of the time. Every cancer patient I’ve talked to felt the same way. We learned so much about The System, and how critical being  an informed patient is to getting the treatment you need, how to deal with difficult doctors, troubleshooting and taking charge of pain control– and so much more, none of which you will hear about from your doctor.

You owe it to yourself and your loved one to benefit from all that we learned the hard way.  This is the kind of information that, until the publication of this book, could only become part of your database by living through it and  realizing in retrospect how all the pieces fit together: colon cancer from the patient’s and caregiver’s point of view.  $9.99 seems like a very small price, considering the emotional and physical suffering you will likely be saved by learning from our experience.

Shedding Light on the Cancer Journey: Navigating the Colon Cancer Maze http://www.amazon.com/dp/B004T3331M can now be read on any computer or other reading device. The reader interface is available free from Amazon and is downloadable in seconds.

I will realize absolutely no profit from the sale of this book.  All proceeds from the sale of this book will go towards the support of the 400 monks, nuns and yogis in the seven Tibetan monasteries of Tulku Orgyen Zangpo Rinpoche, who have devoted their lives towards building the foundation for peace and freedom from suffering for all beings in this world.

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About surfingon

I live in Hawaii. I surf in the winter and swim in the summer. I have been a hospice volunteer with a contemplative-care oriented hospice for 25 years have been part of their team that trains new volunteers for the last 9 years. I have walked the colon cancer path with my beloved husband these past 5 years. He died very peacefully in April 2009. I now seek to share what we learned, to shed light on the many dark corners of this often mystifying, heartbreaking and heart-opening journey.
This entry was posted in cancer treatments, caregiver to cancer patient, coping, patient advocate, side effects of cancer and tagged , , . Bookmark the permalink.

One Response to SOMETIMES TOO MUCH RESEARCH IS NOT A GOOD THING

  1. Ilona says:

    Thanks Rachael for being so honest. It is painful to read but courageous.

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